Chloë Adlerstein, 32, who has talaasemia, an inherited blood disorder, will face the London marathon to raise funds for the United Kingdom Talasmia society.
The condition affects the body’s ability to produce normal hemoglobin, which results in very little oxygen in the bloodstream, leaving those with severe symptoms, including extreme fatigue and lack of breath.
Chloë had lived with Beta talasia all his life, but it was not until 17 years when the condition was finally identified by a random blood analysis.
It was only at this time that doctors realized that throughout life, Chloë worked with his leg in less than half of the oxygen than his companions.
Chloë said: “I am more surprised than anyone to be in this position to run the marathon, since I grew up believing that it was only garbage in sport or anything energetic.
“I feared school sports days, especially the cross -country race, since I knew it would fight and probably would reach the last.
“It was not a doctor, they told me that I had my leg living in less than half of the oxygen than my colleagues that everything began to join and make sense, it is not surprising that I would have suffered fatigue and hate physical education.”
Chloë, originally from Leinteshire, now lives and works full in London.
At approximately the years, it has become increasingly dependent on regular blood transfusions and since 2023, now attends the Macmillan cancer unit at the University College London hospital to receive two to three units of blood every two weeks.
She is accounts manager of the Ann Savva group and works regularly from her hospital bed.
When they talk about those who give the blood necessary for their biweekly transfusions, Chloë said: “I am eternally grateful to all the children’s souls who take time for their busy lives to donate blood, to allow people like Live Somowe.”
“Without them, I would never have a leg capable of running, much less complete a marathon.
“I implore anyone who can, to give blood, is such a selfless gesture considering that you will probably never meet the beneficiaries, but as one that I can sector, we are very grateful.
“Your blood has given me the vital force and energy to do this.”
Pearla Eleftheriou, Chloë’s consultant, the hematologist, said: “To all runners attack for the London marathon this year in support of the United Kingdom’s talaasemia society: it is not only running by force, but is running out of hope, greed, the consciousness of talaasemia.
“His dedication and resistance inspire us all.
“Thanks to all for each step, every mile and every beat you dedicate to this cause.
“Special I shout at one of my own inspiring patients Chloë. Go for it, my girl.”
Phod Wilson, Talassemia Society of the United Kingdom, added: “On behalf of the Thalassemia Society of the United Kingdom (UKTS), we can how incredible we are from Chloë, which runs the TCS London and Hassensenen marathon
“The determination and appetite of Chloë’s life is an inspiration for all of us and we could be happy to be part of his journey while embarking on a really incredible challenge.
“Well done Chloë and we all wish you the best of luck.”
Dee Thiruchelvam, director of Blood Nursing and NHS transplantation, said: “It is incredible to see that Chloë can participate in an event as physically challenging as the London Marathon, especially known that it is not simply that Bee does not make sure that blood is there when patients like Chloë need it.
“Throughout the country, and particularly in London, we have a growing number of patients such as Chloë who depend on regular transfusions for conditions such as talasmia and falciform cells and we urgently need more donors to advance and help advance.
“Reserve an appointment today to help us save and improve even more lives.”
